Archive for the Week 05: Significant Other Category

Significant Other By Meloni

Posted in The Blogs By Meloni, Week 05: Significant Other on August 8, 2011 by Cookie Has A.S.

I think this entry is probably the easiest to write! What would I do without my significant other..Lang! I think of how hard the past 4 years have been as I’ve been diagnosed with a horrible disease. Something that I never would wish on my worst enemy…yet, something that not only affects me, it also effects my family and my husband!

He tries to understand what I’m going through and I in return try and understand what he is going through. You may be saying right now, but he doesn’t have ankylosing spondylitis….and I just stop and think…obviously neither do you or your significant other because that wouldn’t be your thought!

Chronic diseases effect everyone they are around! For those living with a chronic disease you know how important it is to have support. That person who will let you just lay there and do nothing because that’s all you can do! That person who stays positive for you and yet lets you be all grumpy if need be. That person who all the sudden must take on your roles, because you are unable.

For those that have a chronic disease and you don’t have that significant other, then find those of us who can share with you through your struggles. One you can talk with and cry with.

While I wish that AS had NEVER entered my body, I sooo wish that it had NEVER entered my marriage. Even though it has, it’s great to have someone who loves you soo that even in sickness they are standing right beside you. It’s not just my fight, it’s my families fight. We’re a team and nothing can come between us–not even AS!

AS may have my body, but not me!

In Sickness And In Health, My Husband By Kate

Posted in The Blogs By Kate, Week 05: Significant Other on August 8, 2011 by Cookie Has A.S.

 

My husband and I were five years into our marriage when I was initially diagnosed with the wrong diagnosis but it wasn’t completely wrong, it was close. I was initially diagnosed with psoriatic arthritis presenting without psoriasis. We were having a very cold winter here in Georgia with a few ice storms and I was 28 years old. I woke with excruciating pain in my heel, ankle and wrist one morning along with warmth and redness. My husband being concerned drove me to the doctor who at the time tested me for rheumatoid factor and gave me a referral to a rheumatologist in our area. The wait time was very very long- about six to eight months. I made the mistake of calling a different rheumatologist who would see me right away and they gave me the improper diagnosis of PsA. The rheumatoid factor did come back negative. My husband has seen me cry and fight through the pain, the emotion of not knowing what was going on, and has always been there to hold me through it all. Even when he doesn’t understand which is almost all the time, he is there for me. I may feel that he should understand but that isn’t fair to him. He doesn’t have this disease. He doesn’t have what I was later diagnosed with as ankylosing spondylitis by a better rheumatologist. How can I expect him to possibly understand a disease that he has never experienced in his life? Or to expect him to understand pain he has never experienced? I can’t. Sure I can give him an analogy of what it might feel like to have AS but that still wouldn’t allow him to fully get it. You know what though? I don’t want him to know what it’s like either. We have had our ups and downs in our marriage because I am ill but it has made us stronger as a couple. Sure I wish I wasn’t sick but at the same time it would make us completely different people, possibly less compassionate, less empathetic or less sympathetic people. I LOVE who I am. I LOVE who he is. I LOVE us. We are a beautiful couple and that’s what matters to me. My husband is my world, he supports me through sickness and as little health as I get too. I do the same for him.

Significant Other~Will Never Your Eyes, Soul, Heart By Dana

Posted in The Blogs By Dana, Week 05: Significant Other on August 8, 2011 by Cookie Has A.S.
 
 
When I first looked into your eyes,
 
I knew you would hold my hand.
 
On our first date, you looked in my eyes

and said, by my side, you would stand.

How did you know already that you loved me?

How did I know that you would never leave my side?

The eyes are the windows to the soul, you see, 

and we gave each other our souls as we met with our eyes.

When you told me you loved me,

I already knew

that I was in it for the long-run, sweetie!

Because I Loved You too!

Unfortunately, you were in it too,

and your long-run was quite bumpy.

My life ended up quite chronic and way too true!

When you said “will you?” you also got my chronic pain~crummy!!!

I said yes! without a thought.

I know you had at least one or two…

There hasn’t been one struggle that together we haven’t fought

because we are soul mates, and that is what we do.

For richer, for poorer, in sickness and in health,

If only we knew how hard it would be.

I never wanted wealth,

but one day with no pain would be SWEET!

You have made each day a little better,

and each night with less pain,

You have made me able to write this letter,

and given me a kiss that takes all the bad away!

Do I take you to be my husband?

Yes, yes, yes!

I would do it again and again.

You have kept me from becoming a complete mess.

You have taken on so much

from helping with our home,

to cooking without a fuss,

and most importantly–being my caretaker/caregiver all on your own.

You bathed me,

shaved my legs and washed my hair.

You help with our baby,

and you always care.

I have had surgeries,

even replaced my joints.

You have taken me for I.V.’s and helped with injuries,

and you have always been there, which gives you brownie points!!!

I will say “I do” again and again,

I would hope you would too.

In this relationship, I win,

but I hope that you would also again and again say “I do”.

I hope that just because my body is falling apart,

you will always know who you met,

when you first looked into my eyes, into my soul and saw my heart.

That person is still there and will never your eyes, soul, heart forget!!!!!